Hi everyone, I will be hosting the MDA caregiver's chat,It is every Monday between 3&4 that's eastern time,It is right before the living with ALS chat.It has...
Hello! My name is Maria. I live in Bulgaria and I am 41 years old. I suffer from ALS (my diagnosis is yet unconfirmed) and would like to find friends who have ...
To All, I am helping to host an ALS TDF benefit event on behalf of the Fran Delaney Foundation (www.frandelaney.com) at the Ice Center in Salem, NH on March...
Hi, I am really pleased to hear about the event. I live in Kentucky and couldn't make it but I would love to help by buying a ticket. If you could get me...
Hello to everyone, I am hosting the MDA caregiver/ Spouse Chat,It is every Monday between the hour's of 3:00 pm & 4:00 pm that is eastern time.The address is...
Hi Bob, Im so sorry I didnt get back to you earlier. I dont check my emails as often and I just read it today. I hope your event was successful, please keep me...
Hi Lita, I'm very pleased to read your E-mail but as I'm quite new in this web site and even in corresporending by this way(I mean in corresponding through...
I just found this chat group, thank god, I was wondering if I was going this alone. What are time frames from diagnosis to the end of the road, if people could...
Hi Trevor - I am sorry about your dx and want you to know that you are not alone. I don't think anyone but the good Lord knows how long from diagnose until the...
Trevor, All patients are different. It seems ALS affects everyone in different ways. Some are diagnosed and only are around for a year or two, but some are...
Hello Harold, I read your letter to Trevor and was very moved by it. I agree with you that God plays a BIG part in how you are able to handle your disease and...
Finally, after much insistance and doctor shopping, we found one doctor in our area who was more familiar with Lyme's disease than others. He tested Michael a...
My Father lost his battle with ALS on March 9, 2004. He was dx with bulbar onset December, 2002. He was only 60 yrs old. I am a 34 yr. old female and I have...
I am out of ideas, my friends, so I turn to you all! The ALS Support Network of Appalachia is planning our fundraiser for June 18th (Lou Gehrig's birthday...
Hello Everyone, It is with great sadness that I am conveying to you the death of our dear friend Denise V. at Copper Terrace Long Term Care Facility in...
I'd like to share a photo of our one of our roses in bloom ! We were blessed with blooms all year long here in Sunny Florida ! Here you can also see my...
I know this is a long story but it has a wonderful meaning!! Hopefully it will touch your heart as it has touched mine. Maybe you are wondering about some...
Many thanks for your suggestion; we have put it in the pile and will see what we vote on. Thanks again for your help! Sincerely, Claire B Culver, wife of PALS ...
hi,my father had hereditary ALS he passed away in 1999. As far as our family knows only my grandmother and father had it so far. Unfortunatelly with this...
Thank you for your reply and your thoughtfulness. I, like you, "notice" my muscles twitches more now and dropping things. This is going to sound ridiculous,...
My husband has ALS symptoms for five years and is considering getting a feeding tube. He is concerned however, that if he gets a feeding tube, his ability to...
Hi, PLEASE do know that even with a feed tube HE WILL be able to eat! We were not told that and Mom wanted to wait until it was absolutely necessary and it was...
Hi Julie, I'm sorry and I udderstand about the sad days! I pray for your strength, comfort and faith. Do know that you are thought of. Blessings to you and...
My uncle had ALS and had to get a feeding tube. He still was completely able to eat everything he still wanted, it was only until he had trouble swallowing...
Can someone who has ALS please respond if you can? My husband is considering getting a feeding tube but is concerned that if he stops eating, he will lose the...
After Sept. 11th, one company invited the remaining members of other companies who had been decimated by the attack on the Twin Towers to share their available...
Subject: LITTLE THINGS That was beautiful and I always believe in Little Things ! Hope you don't mind if I share it with others ? Allison from Florida Dx March...
