Do we need the ALS Registry ? PLEASE tell us what your thinking is on this. since there is alot of talking going on about ALS Registry i started a poll on it. ...
I had an aunt who was diagnosed in March of 02 and passed shortly in May 03, my mum has now been recently diagnosed with ALS (March 05). I am haping to find a...
... I ... struggle. ... using ... Sorry I just found a typo, my aunt died in may 02 and i believed was diagnosed in jan 02, she lived with this disease for 5...
Denise, my mom was never bitten by a tick. I am not sure if als starts out different for everyone or not. But my moms started with her legs, she was unable...
I wondered if anyone has heard of the Chinese supplement Bunaogao? I have seen this mentioned a bit on the internet but I have not heard of any patients with...
I have not heard of that supplement, however I have heard of Mangosteen (
Xango). My mother suffers from ALS and she has been taking this juice for 4
months....
Michele, thank you for you feedback. I will look into the mangosteen and hopefully it will work for her. If you do not mind me asking how long has your...
My mother has had ALS for almost 2 years. She is 57 years old. You can go
to www.mangosteenmd.com for more information on the juice. How long has
your...
thank you for the web address. my mother will have had ALS for 16 years in 2006. I think she has survived as long as she has due to her strong will to live....
Tish I am so suprised to hear that your mom has had it for 16 years. When my mom was diagnosed back in March that said she had had it for at least two years....
Pamela, I am sorry to hear about your mother. This disease is so mind boggling, there seems to be no clear set of symptoms or life expectancy or even how...
Me too. i do not want to see another family go through the same thing my family did. I just wish that there is some way to speed the process of finding a...
Are you sure it is not PLS? PLS is a variation of ALS, most patients after 4 years are rediagnost with PLS [Non-text portions of this message have been...
Hey Luke, This is Frances in Lafayette that had the van for sale. So sorry to hear about your Mom. It's a long old haul isn't it hon. Everything will be fine...
frances hinson <hinson19802000@...> wrote:Hey Luke, This is Frances in Lafayette that had the van for sale. So sorry to hear about your Mom. It's a long...
thanks for the words of wisdom deep down i know everything will be alright and she isn't suffering anymore but i miss her so much and i am looking forward to...
Hi Luke, I am so sorry to hear about your Mom. I know this is going to be difficult for you and your family. Nothing I say can take the pain away, and I wish I...
How ironic that we the people are doing the research to offer an alternative to death by ALS and yet we are met with great resistance from the doctors who are...
A Crop for Sam Scrapcrazycreations.com presents... The December CROP! December 10th from 4-8pm Trinity United Methodist Church Niagara Falls BLVD, Amherst NY ...
my aunts test results came back. here are her results... babasea...negative eurch...negative igm...negative igg...undetermined 5 bands showed positive...
This may sound really naive...but how did you see all these results? Was it just from a blood test? My Mom had fluid taken from her spine, and the doctor...
my aunt was tested using the IGENEX KIT. she had also been tested in the past from hospital laboratories, however, they do not specialize in tick infectious...
How do you get an IGENEX Kit? They don't say on their website? Do you just ask your doctor? ... From: denise To: paulspals2@yahoogroups.com Sent: Tuesday,...
there is a phone number on the website. i just called that number & asked about the kit that way. they told me that they could send the kit, but, first i had...
Roll Call For A Cure to honor matt dowd please come sign it http://brain.hastypastry.net/forums/forumdisplay.php?f=77 and why you are there please do the ...
Wow, I never thought I'd try this stuff, but after a couple of mates egged me on I decided to give it a go. Honestly, I am pretty damn happy with how...
vi.west4201@...
Dec 12, 2005 12:51 pm
1442
As amazing as it may sound many people do not realize how easy it is to LEGALLY stop paying for their groceries! This is how the one hour television show began...
hi group as you all know, my aunt was diagnosed some time ago with als. since then she has been tested for lyme disease using igenex. her LLMD diagnosed her...
