My husband lost his battle with ALS 2 years ago this October, my daughter, who was 2 at the time, only knew her father as he was with ALS. Luckily, I started...
We need to pay more attention to the chronic fatigue syndromes .... pay more attention to CFS, FM, CFIDS They didn't have these 'buzz words in WWII days" Did...
Welcome to the ALS Registry http://www.patientslikeme.com/registry in such a short time patientslikeme has grown to 250 pals from 21 different countries. This...
Autism as a Metabolic Disorder ... and More ... * <http://osiris.sunderland.ac.uk/autism/hplc.htm> Why is Autism increasing so dramatically in recent decades?...
Hi Paul: I wondered if it is ok with you to post this message. If I may, I like to post it every few month. Dina ALSconnection at www.alsconnection.org is a...
D-Day ... June 6, 1944 <http://www.valdezlink.com/pages/d-day.htm> was there 'fall out' to future generations? We need to start thinking outside the box! Does...
we are having trouble with my son-in-laws feeding tube, if you don't hold onto the syringe and the tube at the same time the tube come out of the syringe and...
we are having trouble with my son-in-laws feeding tube, if you don't hold onto the syringe and the tube at the same time the tube come out of the syringe and...
I am sorry for laughing when I read your trouble with the feeding tube. I can't count how many times that happened to me, while feeding my husband. He would...
Thank you so much for your input on the feeding tube, we have laughed about it also, and my son-in-law laughs also, think I will try the towel and baby ...
No problem You can get pumps through your nursing provider. We were through visiting nurses or the VNA. Or speak to your nutritionalist. We got it at no...
Thank you again, you are so helpful, good luck in nursing school, I am sure you will make a good nurse, you have had the experience being a cals to your...
Getting a tube wont change your ability to eat. You can still have normal meals and have a tube in place. Once you lose your ability to physically eat... a...
Hello Joanne, My husband got his tube on April 19 th this year. He was scared, pretty much against it, the drs. indicated he had a window of opportunity as...
regarding the iv stand, do you still have to sit with him and do the plunger to get the food down or is there another way you do it. thanks diane [Non-text...
I just made a forum for my site. Would anyone mind checking it out and offering some advice. Im wondering what other topics to add. It would be great if a few...
I just made a forum for my site. Would anyone mind checking it out and offering some advice. Im wondering what other topics to add. It would be great if a few...
Hi Joanne, My Mom had ALS and we didn't know that you "Can continue" to eat while having the tube...if we had known that she would have gotten one sooner. I...
Concerning the IV stand I syringe some water to clean the tube before and after putting the Jevity in. It takes about 1/2 hour to go in and no I do not sit...
Hi, www.prize4life.org is a tribute to Lou Gehrig and all who suffer from ALS/MND. The number "4" was Gehrig's number and the first number retired from...
Hi Everyone! I'm new to this so please bear with me. My best friend of 40 years is terminally ill w/ALS. She is on Hospice and has approximately 2-3 months to...
Audrey if you would tell me more about the iv stand for the feeding tube or where to get one I would appreciate it. Or if any one else uses a iv stand for...
Diane, We got the IV stand from the Ford ALS Clinic where we go in Detroit. I have to say they have been wonderful. They arranged everything the Peg, stand,...
Thank you so much Audrey, You have been so much help, That was the same way with my son-in-law, He was still eating but choking quite a bit, They wanted...
ALSconnection at www.alsconnection.org is a patient driven registry that aims to collect data from persons with ALS (PALS). It is coordinated by Drs. Robert...
ALSconnection at www.alsconnection.org is a patient driven registry that aims to collect data from persons with ALS (PALS). It is coordinated by Drs. Robert...
Does anyone know of a "chat" group for people with als? Please let me know. Thanks. __________________________________________________ Do You Yahoo!? Tired of...
