This group seems to be in a bit of a lull. I hope that's good news. Is there any caregivers out there still getting these messages? I'm having a hell of a...
My grandpa was diagnosed with ALS in 1992. He is still walking and talking but every day that goes by his is getting worse. The clinic in Columbus diagnosed...
It seems that many must have lost interest in the group. If there is anyone else out there with Bubar onset or anyone that would just like to talk to someone...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the paulspals2 group. File : / Click...
paulspals2@yahoogroup...
May 28, 2002 11:17 am
597
The Senate is set to debate the Brownback bill s1899 within the next few weeks to consider banning some of the best research hopes for ALS. Please take a...
If you live in Colorado, Oregon, or Virginia, your Senator is considering backing the Brownback bill s1899. I posted here just recently, and you should read...
Why can't we just use adult stem cells or those existing stem cell lines to find cures? Excerpt of a letter from Dr. Irving Weissman to the President's Council...
THE DEBATE HAS BEGUN, BUT THE OUTCOME IS FAR FROM CLEAR Last night Senator Brownback introduced the very important cloning debate to the Senate floor by...
Hey Everyone...James Gandolfini (Tony Soprano) from HBO's SOPRANO's entered a celebrity contest on a NY radio station. If he is voted most popular celebrity,...
I am desperately in need of some answers. I'll try to be concise. My uncle, who just turned 53, has been experiencing "pings" throughout his entire body for...
ALS IS VERY HARD TO DIAGNOSE DUE TO THE FACT THAT IT CAN MIMIC OTHER NEURO DISEASES. IN MY MOTHERS CASE WE WERE TOLD THAT THERE HAS TO BE A CERTIAN AMOUNT OF...
Thank you for your response and for telling the story of your Mom. I can only imagine how hard this is on all of you. My prayers are with you. God Bless. ...
HELLO , IAM WRITING ON MY MOTHERS BEHALF. SHE HAS HAD A.L.S. FOR 18 YEARS AND IS STILL LIVING A GOOD LIFE! THE REASON FOR THIS POST IS TO LET YOU ALL IN ON A...
Hello my name is Kimberly and my dad had A.L.S. and he has had it for almost 3 years and his started out with problems with his legs and then went to what he...
Hello everyone I the daughter of Wayne who has ALS and he is going down hill very fast. I know there is others out there family or friends or someone who has...
HI my name is Jami and i am a caregiver of a friend who has ALS and i am just look for someone to talk to the changes that we all go through with carin for...
Hello there Jami~ My name is Kimberly and yes I would love to talk to you. It is very nice to have someone to talk to.. My dad is 50 yrs old and has a...
Dear Dave and other members. Sadly, yes, it is true. Paul lost his battle with cancer July 24th, Wednesday at 2:00 a.m. The funeral is to be held on...
Hi All, Been away a long tme. My MS was bad and I was bedridden from 4/29 - 7/`1 was scared. Thought i was missed dx cause of Mom, but it is MS not ALS. Dr....
My mom was diagnosed with als in July 2002. I was just looking for someone to talk to. Me and my husband are her caregivers and were just looking for others in...
Hello. I'm Taj, and my husband and I are also taking care of my mother, who was dx in April 2000. She is in the end stages now, I'm sorry to report. I'd be...
... Hi, I was caregiver to my Mom in 1999, she passed away 12/24/99. Please feel free to email me anytime, I wish i knew about this room when I was doing it. ...
Hi I really appreciate you emailing me back thank you! I was looking to get some info b/c like I said ever since my mom was diagnosed in July 2002 she has...
My Mother-in-law also went downhill really quick. I also think her MD is not qualified enough to tell her what she should be doing. I want her to go to ...
My mom also declined quickly. We learned the MD was not knowledgeable enough about als. The nuerologist was much more helpful. He put her on Rilutek which...
... years when read your message it relates to my mom 2 first symtoms were slurring of speech then was she had to have feeding tube 2 also very hard for her to...
