PGA CHAMPION TOM WATSON TO HOST BOB PACKARD CUP November Golf Tournament Projected To Raise $1 Million for ALS Research The Robert Packard Foundation for ALS...
Thanks for passing this news along. That is great news. Art ... Johns ... Tom ... effective ... women ... In ... notables ... do ... five ... highlights. ... ...
I have been researching environmental control systems and have come up with 5 systems. They are the Tash http://tashinc.com/catalog/env_infared.html, nemo,...
http://groups.yahoo.com/group/CALSsupport This group is specifically to help caregivers of ALS and PLS patients. These horrific diseases cause so much fear and...
Hi everyone, Dont know how many of you know that the MDA has a special program to help with the cost of almost anything. At a one time $2000.00. They just help...
Jami, Thanks for spreading the word about MDA. They have been wonderful to me. My HMO insurance wouldn't pay for me to go to their clinic, so the MDA grant...
Hi Julie, There is no way to know the "why" of ALS. Being a PALS myself, I feel that the true "gift" of this disease for me is that I have the wonderful ...
I was diagnosed with Als only 3 weeks ago. I saw the disease take my brother's life. My sister and I have questions also. We are Christians also, but why...
Liza, Thank you so much for your words of encouragement. It enlightened me on many things and for that I am grateful. Especially the part about the "now"...
Hi everyone I've been having a little neurological problem for 3 1/2 years. Recently it took my voice. Hasn't been properly diagnosed. Hopefully soon it will....
In response to the gentleman below who has lost his
voice... my father was diagnosed with ALS in January
after having problems with his voice since October....
Welcome Jim, I know how frustrating things can be, but laughter is such a great healer! You have a great attitude. Not having a diagnosis is hard to deal...
HI GROUP, WITHIN THE LAST YEAR, I HAD MOVE IN WITH FAMILY. HOWEVER, I MISS MY INDEPENCE IMMENSELY. DOES ANYONE IN THE GROUP KNOW OF A INDEPENDENT LIVING...
Hi Jim! I LOVE your attitude...make sure you do your best to keep up with the laughing and your spirits. My Mom was always joking around and laughing even in...
Hi Mel, I can understand your wanting your independence...I would think that your local MDA office would have information on that. They are a blessings for ALS...
Wow Liza you are a very strong person and I'm sure that your post has touched all the people who read it. You sound a lot like my Mom did. Blessings to you ...
Hi Julie, There is no making sense of it...I don't know how anybody could. I'm still trying to deal with my Mom's passing of May...asking God why...why.... ...
Dearest Mary, I can understand how you feel. I lost my Mom in May to ALS and we both lost her Mom to it back when I was 6. I am so sorry that your family has...
Hi Mel, Has a doctor actually dx'd you with a form of ALS? I ask because you stated people are saying you don't have it. ALS is a lovely inheritance in my ...
Mel, I just wanted you to know that some people take a very long time to progress. My dad was diagnosed 5 years ago and he has just gotten to the point in the...
Is any one taking Rilutek? What are the side affects for you? I started taking it and it made me weaker, hurt my kidneys, and my heart. Does anyone know if ...
HI, THANK YOU. YOUR E-MAIL WAS VERY ENCOU'RAGING. HOPE TO TALK TO YOU AGAIN. MEL Amber <ambertricker@...> wrote: Mel, I just wanted you to know that some...
Jamie, Thinking of you. Lost e=mail address. How is Bo doing with the eye response computer? Hello to you, Bo. Does Bo take anything for anxiety? Douglas is...
HI, YOUR CONVERSATION LOOKS PRIVATE, BUT I TAKE KLONOPIN. IT IS A MUSCLE RELAXER AND CAN HELP WITH ANXIETY ALOT. MEL Joyce Alfiler <joalfile2000@...>...
HI, MEL, I WILL TALK TO THE RN ABOUT IT. DOUGLAS ANXIETY IS SO BAD ACCORDING TO HIM, HE FEELS LIKE BURNING UP AND NEED ICE CHIPS AND CAN'T BREATHE AND...
Hi Jamie, Sorry to hear Douglas is having such a problem with anxeity(sp) I know there are several things they can try. My Mom was on Remeron and it worked...
