We are new to the Triangle area and are looking forward to networking with other SB families. My son is 14 and has SB. Is anyone intersted in getting...
ONLY 4 DAYS LEFT TO TAKE THE SURVEY!! <><><><><><><><><><><><><><><><><><><> Last Day of Survey - April 8 <><><><><><><><><><><><><><><><><><> The National...
The dr just gave us miralax for my son. We have been trying to control his bowel with prune juice, and it was working, but it seems to have started to loose...
GRETCHEN WESTER <cntrygrl23@...> wrote: The dr just gave us miralax for my son. We have been trying to control his bowel with prune juice, and it was...
SBAA Annual Conference: June 26-29 Register Online at www.sbaa.org Make plans now to attend SBAA's Annual Conference, June 26-29 at the Hyatt Regency,...
Hello to All. I am a pediatric genetic counselor who is currently working with new parents of a baby with thoracic spina bifida and moderately severe ...
Children With Spina Bifida is group intend for parents of children that have SB, expectant parents of child that will be born with SB, Adults with SB & to make...
<><><><><><><><><><><><><><><> Early Bird Reduced SBA Conference Registration Extended Through JUNE 1 SBA'S ANNUAL CONFERENCE “Building Bridges to Advance...
I will be out of the office starting 05/19/2005 and will not return until 05/22/2005. I will respond to your message when I return. If this is regarding Pompe...
Joanne Mackey
macke003@...
May 21, 2005 5:03 am
145
In NC kids can get their driving permits at 15, right? Does anybody have experience with SB kids/adults driving? Garion has L3-L4 Meylo and walks with AFOs...
... No idea what it costs, my daughter is years away from driving. The major automakers (GM, Ford, Chrysler, Toyota, ??) offer $1000 rebates on retrofitting by...
Hi, and welcome to NC! Not sure where you live in NC, but we are in the Charlotte area. Have used an approved contractor (named Vann Mann)for a van lift. We...
Has anyone heard of either of these surgeries? If you have can you please tell me a little about them. My son, Keith - 8yrs old, is scheduled to have the...
Yes, I have heard of both of these procedures. My daughter, now 9, had the bladder neck done when she was 3. It was done at the same time as a uretur ...
I found this article in the Charlotte Observer today. There's a new company called Willow that will be bringing REAL work-from-home jobs in customer service to...
SIBLING RESEARCH PROJECT Volunteers 11-18 years of age with a brother or sister with spina bifida and their parent are needed to take part in a study conducted...
SIBLING RESEARCH PROJECT Volunteers 11-18 years of age with a brother or sister with spina bifida and their parent are needed to take part in a study conducted...
Hi! I just wanted to introduce myself. I am a 33 year old lady who enjoys living life. I am from close to the Raleigh area in North Carolina. I look forward to...
My family has been dealing with my brother being sentenced to prison. I have come to find out that more 2.5 million families are in the same situtation. Just...
We are in the RTP area too. Do you have SB? My son, age 14 has SB. It would be nice to meet some success story type people. Actually anybody with SB would...
Hi, My name is Amy. I live in Gastonia N.C. I also have a son with Spina Bifida. He is 4 years old and is the joy in our lives. He also has a shunt. He's...
Hi! My name is Steve and I work for a medical supply company. I am in the urological field and help people obtain their catheters. I usually work with the...
steve <steve_court2003@...> wrote: Hi! My name is Steve and I work for a medical supply company. I am in the urological field and help people obtain...
Great! I will send the info. Just need a mailing address(no po box) If you can call me I will need a little more info like size of the cath, what type of...
Hi! My name is Steve and I work for a medical supply company. I am in the urological field and help people obtain their catheters. I usually work with the...
