Below is an article that I saw that might be helpful to 'Coolman' as well as others. You are also welcome to go to www.pfeiffer.edu (click on student services,...
I will be out of the office starting 08/04/2005 and will not return until 08/22/2005. I will respond to your message when I return. If this is regarding Pompe...
Joanne Mackey
macke003@...
Aug 5, 2005 5:01 am
188
I thought group members might be interested in the following information. The Institute for Child Health Policy (ICHP) recently completed work on a booklet for...
Hello everybody! If you use intermittent catheters please contact me for a free info pack and free samples. This system is designed for people who have had...
<><><><><><><><><><><><><><><><><><><><><><> NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY/ ENCUESTA DE ESPINA BÍFIDA - PARA ADULTOS Y FAMILIAS ... September....
<><><><><><><><><><><><><><><><><><><><><><> NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY/ ENCUESTA DE ESPINA BÍFIDA - PARA ADULTOS Y FAMILIAS ... September....
I thought members of the MD-list would be interested to learn that a Health Care Transition Training Program for youth and families has been completed and is...
<><><><><><><><><><><><><><><><><><><><><><> NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY/ ENCUESTA DE ESPINA BÍFIDA - PARA ADULTOS Y FAMILIAS ... ...
I wanted to invite you to join my new group. It is a group for all disabilities. I myself have had a spinal cord injury for four years. I would love to see...
Please take a few minutes to take the National Survey of the Spina Bifida Community! To take this online survey now, go to www.sbaa.org and visit the...
The last survey found that most respondents were aware of the recommendation that adults with spina bifida check their skin everyday. However, only about 30% ...
Hi Everyone, My name is Michelle, I'm 21 yrs old and I have Cerebral Palsy (cp). I find it hard to find others with cp and other disablities around my age. One...
Hi, Everyone! Our family lives in NC and is involved with SBANC. My daughter Breanna (12) was born with SB. I thought some of you might be interested in seeing...
Hi Everyone, I just join this group and I wanted to introduce myself. My name is Marti, I am 18 years old. I have SB. I am in a wheelchair. I am from North...
Laura Ferguson has sent you an important action alert - read below for more info, and take action at: http://www.thepetitionsite.com/takeaction/956710582
Hi...
Our 18year old daughter with SB will be working at her first job and can not take care of her periods. Her doctor suggested methods to stop it and we agree...
Dear Cathie, I am a 32 year old female with SB and I stopped menstruation with a Depo Provera shot the doctor administers every 13 weeks in his office. My...
Thank you for your response. I have gotten two different opinions from doctors on what to do. Your response was very helpful.By the way, we live near Charlotte...
Hello, My 13 yr old daughter recently started her menses. We had discussed with pediatrician previously. There was no question that she would be able to...
Thank you for your response. Did your family doctor prescribe this? Our Dr. recommends endometrial ablation for our daughter to make it more reliable and...
Hello, My son, 7 y.o., has spina bifida. We just moved to NC from CA. I am really interested in finding a support group for myself and my son for the struggles...
Hello, My son, 7 y.o., has spina bifida. We just moved to NC from CA. I am really interested in finding a support group for myself and my son for the struggles...
Hello group, I also need to start looking for doctors, clinics, therapy and prosthetics for my son. In CA we went to a spinabifida clinic where all the doctors...
What area are you in? You can see support group areas at www.sbanc.org Susan _____ From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On Behalf Of...
We are just outside Charlotte in Union county. I looked at the sight and see there is a group for the Charlotte area. Thanks, I had seen that site a few months...
Hi, Mari and to the other adult in Charlotte area with spina bifida. I'm also an adult in Charlotte with spina bifida. I'm a 32 year old female, married,...
Hi Monica, So great to meet you (although online), because we have not had much contact with other SB people. We are struggling with many issues surrounding SB...
Cathie, Yes, my daughter's pediatrician prescribed the patch. My one thought regarding the endometrial ablation is to question if that is in effect a form of...
