Hi! We are new to the group. We are considering a move to Asheville, NC in the future and were wondering about resources for our 7yo daughter, who has SB...
<><><><><><><><><><><><><><><><><><><><><><> NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY/ ENCUESTA DE ESPINA BÍFIDA - PARA ADULTOS Y FAMILIAS ... ...
NATIONAL SURVEY OF THE SPINA BIFIDA COMMUNITY The National Survey of the Spina Bifida Community is a biannual project of the Spina Bifida Association (SBA)....
Register at www.sbaa.org and SAVE $60 We're Extending the Low "Early Bird" Registration Rates for SBA's Annual Conference through JUNE 15! You can stretch your...
It's Not Too Late - Visit www.sbaa.org To Register for SBA's Annual Conference & SAVE June 25-28, 2006 in Atlanta, Georgia Register Now! Reduced Early Bird...
Research Articles Online - Online Resource Now Updated! SBA National Office has just updated the results of a quarterly scientific publication search on Spina ...
Hi Friends! We are new to Asheville, with our 7yo with Spina Bifida. Interested in meeting local families, especially children of similar age, as our 7yo "Ana"...
Hi, My son has SB, he is 7.5. He is starting to realize his limitations too and becoming more aware of how he can't play regular sports. We live south of ...
... limitations too and ... Behalf Of ... our ... Hi Al & Karen, Mari, I'm one of those guys that grew to adulthood with SB. I'll be 43 in December. I remember...
Hello all. I am new to the group. I have been researching for years people with SB getting and being pregnant. I went through infertility treatments with my...
Rita, There have been many women who were born with spina bifida and who have had successful pregnancies. I would say that your first step would be to find a...
Joanne Mackey
macke003@...
Aug 21, 2006 1:02 pm
247
I found out that my two year old had spina bifida when I was twenty three weeks pregnant. And because I'm a nurse and proactive I had my husband shipped off a...
CAP C isn't income dependant. My daughter has CAP C. You have to qualify on 3 of the 5 delays that are possible. This is where you have to really think...
They told me if we don't qualify SSI and because that we didn't qualify for that we didn't get medicaid,when I asked another way they said a waiver program,but...
... qualify for that we didn't get medicaid,when I asked another way they said a waiver program,but I've been turned down twice, and yes I think the first time...
I have found that it is nearly impossible to find the programs in NC. If you qualify for SSI (which is income based) then your child automatically gets...
Well we heard about the shriners, I tried calling the local shriners club but no one ever picks up their phone. But they only do orthopedic diagnosis help,...
my name is reann i am 25 and from wales (UK) i have 2 kids and pregnant with my 3, we have been told that she has spina bifida. she has the meningocele type...
Reann, Congratulations on your new little girl! You did not say if your other children were girls or boys. I am the mother of a child born with Spina Bifida...
Joanne Mackey
macke003@...
Oct 18, 2006 4:44 pm
256
SAVE THE DATES! Spina Bifida Association 2007 Annual Conference June 24 – 27, 2006 Louisville, Kentucky Conference Hotel The Galt House & Suites Reservation...
Hi all! I was just wondering if there are any families out there near high point nc, I have a 4 year old with tcs, nuerogenic bladder and bowel etc. I would...
Hi Faith, We are new to NC too (since August 2006), and living in Asheville. I am unsure how close that is to Highpoint. We are still linking to services. We...
<>Spina Bifida Association Updates<> 1. SBA 34th Annual Conference in Louisville Kentucky June 24 - June 27, 2007 Register Online Now SBA's Annual Conference...
Faith, Hey! I'm a 29 year old female with spina bifida living in the Winston- Salem, NC. I know that Baptist Hospital here in Winston-Salem has a SB clinic...
Hi! We live near Winston-Salem. I have an 11 year old daughter with SB L3. Susan _____ From: sbaofnc@yahoogroups.com [mailto:sbaofnc@yahoogroups.com] On...
Hi Faith, My name is Cynthia, I also have a 3 1/2 child with (Spina Bifida) bladder and Bowel movement problems. We live in Monroe, NC. I would love to...
Al, I have an 8 yo son with SB, neurogenic bladder and bowel, etc. We live in NC too. Can you explain what you said about where to get started with services. I...
