Hi I have just joined the group and have a new ileostomy. The stoma and the mucus fistula have ended up right on my beltline which causes problems with the bag...
Hi everyone- I've recently revamped my personal website and was wondering if anyone would like to contribute their personal story to it? It's aimed at offering...
Dear Tony You and I must be in a similar position, I too recently underwent an ileostomy for UC and have a mucous fistula with the option of a j pouch later...
Wow. I never realized that the cramping in my legs might be due to the colostomy! I learn something new everyday. Thanks for the info. I also found an amazing...
- I happen to agree... I dont get to sign onto the group like i would like but when i read that email... I bout fell over!! How inconciderate to say such a...
OK OK Dont i feel like the butt head now.. Jason i should have read the previous notes before i went off . I apologise . Ihope you do understand though that...
hi my name is anne,i have a 2yr old girl who had a stoma op last month ,when changing her nappy today i noticed that she was staining her nappy with poo is...
To reduce her ileostomy output, she simply needs to eat a whole tonne of salt. Add it to her dinner, cook her veggies in it- get her to eat as much of it as...
Hi Anne, You can sometimes get a build up of mucus and you can pass that through your back passage maybe that is what the staining is. You could maybe also get...
Hi everyone. I'm a new member and wanted some opinions on ileostomy reversal. I'm 16 and have an ileostomy. I am anaemic and have had several lots of adhesions...
Hello K, Im a 34 yr old female that has had a ileostomy going on 20 yrs this November, I too was a canidate for reversal after just one year with the...
hi i had a colostomy reversal in 99 i had an operation called dynamic graciloplasty it was for bowel incontinence due to damage to sphincter muscels my...
Just read your letter re. a reversal. My thoughts re. thisprobably would be different from yours,as I am 84 yrs old, you are just 16. I spent 3 wks in...
Hi Kay, I'm 24 and I'm in the same boat as you- considering whether or not to have a reversal. The things I take into consideration are 1. Is it going to make...
Kerry Although most of what you say is true, I would like to give my perspective as someone who has had the pouch surgery. Firstly, a brief summary of my...
Just to clarify- I meant that the ileostomy must be kept at least 6 weeks after the reversal operation. My surgeon said he wouldn't consider doing a reversal...
Caralyn, As an ostomate of almost 20 years your story is very very frightful, your only the second person i have ever met who has had the problems you did...
I can't have a reversal, but have a friend who just went through one. She had her Ileostomy almost 16 months when the reversal took place. Not to scare anyone,...
Hi all Just wanted to give an update on Pat (notlobs). I spoke with her and her husband yesterday and she is finally sounding better. She had a terrible...
Whatever the ostomy, whatever the reason, be it IBD, cancer, trauma, etc, you are welcome to come and chat. Why not come and join us even if you don't have an...
... True ... I also had trouble with waste comin out the vaginal but i had a recal vaginal fistula due to corhns and had to get a colostomy in 99 when i was 17...
I too have many problems as your employer.First she actullay may need more fibre. It suppose to thicken things up. For the gas she may want to try Beano an...
Hi. I am going to have colostomy reversed in November 02. I appreciate all the information I am getting about reversals although a bit scary. Please give Pat...
Shannon Thank you so much for your e-mail - you really did cheer me up!! I think you tend to forget just what you have been through until you actually take...
Thanks Cosmic for the warm words of support and encouragement. It means a lot to know there are people out there who give a damn! Big Love Caralyn XX ... ...
Although it is very easy to let things get on top of you - it is so important for you to be positive. I am 16 and have had an ileostomy for 2 yrs now. My...
I don't know who could have said it better destiny!! Bravo! You are a great inspiration who seems to have a great head on their shoulders. Hang in there...
Thankyou. As for 'bulkers' I have tried everything! My stoma nurse thinks that things will improve when my health does - but thanks for the suggestion. -K ... ...
